Multiple Sclerosis -
Support Groups
UNITED STATES
Fairbanks Multiple Sclerosis Support Group
Access Alaska
526 Gaffney Road
Contact: Doug (907) 479-7940
Meets: Second Wednesday of the
month from 12:00 - 1:30 p.m.
Uncle Sam's MSF Support Group
Call For Location
Contact: Doug or Beth (623)566-5902
Email: bldeagle@dancris.com
Meets: Third Tuesday of the month at 12:00.
No meetings June, July & August
Little Rock MS Support Group
Pulaski Heights United Methodist Church
4823 Woodlawn Ave.
Contact: Christine (501) 663-6390
Email: GOTMSINLR@aol.com
Meets: Third Tuesday of the month at 6:30 p.m.
HOPE4 MS
Redding Christian Fellowship Church
2157 Victor Ave
Contact: Patricia Johnson or Beth
Aarhaus (530) 222-7277
/ (530) 246-8404
Email: hopefourms@yahoo.com
Meets: First Saturday of the month
from 10:00 a.m - 12 p.m.
Familia Unida Living with MS Support Group
Rosemead Community Center
Contact: Eliseo Lopez (323) 260-2804
Meets: Fourth Friday of the month from
7:00 - 8:30 p.m.
Lorna Wheatley Memorial MS Support Group
Salinas Valley Memorial Hospital
450 E. Romie Lane/Downing Resource
Center Room B
Contact: Ruth (834) 422-7005
Meets: Third Friday of the month from
11:00 a.m. - 1:00 p.m.
Sonoma County MS Group
Earle Baum Center for the Blind
4539 Occidental Road
Contact: Debra (707) 569-9976
Email: debg@sonic.net or
ms.sonoma@yahoo.com
Meets: Fourth Saturday
of the month
from 1:00 - 3:00 p.m.
MS Quality of Life Project
Oldmeyer Community Center
986 Hillby Ave
Contact: Marie (831) 649-1645
Meets: Second Saturday of the month
from 12:00 - 2:00 p.m.
Rocky Mountain MS Caregiver Support Group
King Adult Day
Enrichment Program
2851 West 52nd Avenue
Contact: Pat Breese (303)433-6887
Meets: Second Tuesday
of the month
from 7:00 - 9:00 p.m.
Brandon MS Support Group
Brandon Library
619 Vonderburg Dr
Contact: Gaye (813) 681-4284
Email: BrandonMSsupportGroup
@gmail.com
Meets: Fourth Monday of each month
from 7:00 - 9:00 p.m.
MS Mighty Survivors
Support Group of Clermont
1099 Citus Tower Blvd
Contact: Peggy (352) 243-1366
Email: lewpeg@cfl.rr.com
Meets: First Wednesday of the
month at 10:00 a.m.
Central Brevard MS Self
Help Group
Central Brevard Reference Library (main room)
308 Forrest Ave
Contact: Kevin or Ernie
(321) 636-0235 / (321) 631-3645
Email: rkkelley@cfl.rr.com
Meets: Second Sunday of the month from 2:00 - 4:00 p.m.
The MS-Keteers MS Support Group
Our Lady of the Lake Church
Religion Education Center, 1310 Maximillian St
Contact: Nayda (386)789-0332
Email: mskeeters2004@embarqmail.com
Meets: Third Saturday of the month at 1:00 p.m.
Northwest Florida MS Support Group
MS Ft. Walton Beach Group,
Bob Hope Village, Holly Ave
Contact: Shirley or Deborah
(850)651-9454
/ (850)729-8825
Email: Hibarger@aol.com, Mueller@nuc.net
Meets: Second Saturday of the month at 10:30 a.m.
Holy Cross MS Support Group
4725 N. Federal Highway-2nd Floor
2nd floor multi purpose room
Contact: Marion or Dori
(954) 730-8188
/ (954) 771-8864
Meets: First Thursday of the month from 1:00 - 3:00 p.m.
Great Pensacola/Gulf Breeze Support Group
Gulf Breeze Parkway (in the cafeteria)
1110 Gulf Breeze Parkway
Contact: Stephanie (850) 932-9496
Email: Robin@jmcnulty@mchsi.com
Meets: Third Saturday of the month
at 10:00 a.m.
Hollywood MS Support Group
Hollywood Beach
Community Center
1301 S. Ocean Drive
Contact: Judy or Linda (954)
456-1424
/ (954) 270-0023
Meets: Second Thursday of the month
from 6:30 to 8:00 p.m.
Families Against Multiple Sclerosis
Select Physical Therapy
302 S. Line Ave
Contact: Shana 352-341-3740
Email: sdlamphere@gmail.com
First Saturday of the month at 11:00 AM.
The Osceola "Ants" (A, Natural, Tough, Self Starter)
KUA
1701 Carroll St
Contact: Jeffrey Hamilton (407)891-2327
Email: jeffhamilton@cfl.rr.com
Meets: Third Thursday of the month from 6:00 - 8:00 p.m.
Lakeland Area MS Support Group
Resurrection Catholic Church(The Father Sheedy Center)
3716 Old Road 37
Contact: Lisa or Gus (863) 644-0239 after 6 p.m. / (863) 398-4429
Email: postmaster@lakelandareams
supportgroup.org
Meets: Second Saturday of the month from 1:00 - 3:00 p.m.
Pity Us Not Support Group of Central Florida
Florida Waterman Hospital
1000 Waterman Way (On the east side of 441 in Tavares),Conference Room
Contact: David (352) 638-0663
Email: pityusnot@hotmail.com
Meets: First Friday of the month from 10:00 a.m. - 12:00 p.m.
Marion County MS Self Help Group
Denny's Restaurant
3801 West Silver Springs Blvd
Contact: Jean or Debbie
(352) 207-4251 / (352) 245 8139
Email: mcmsgroup@aol.com
Meets: Third Wednesday of the month from 11:00 a.m. - 1:00 p.m. No Regular meetings from June - August. All other activities continue throughout the year.
Flagler County MS Lunch Bunch
Florida Hospital Flagler
60 Memorial Medical Parkway
Contact: Vickie (386)437-3185
Email: jdimarial@cfl.rr.com
Meets: Third Wednesday of the month at 6:30 p.m.
Living Well With MS
Cultural Center of Charlotte County
2280 Aaron St , Conference Room 1
Contact: Kelley or Michele (941)766-1117 / (941)204-2263
Email: kelley.ryan@comcast.net
Meets: Second Tuesday of the month from 6:00 - 8:00 p.m.
MS Support Network of the Treasure Coast
Port St. Lucie Community Center
2195 SE Airoso Blvd
Contact: Denise (772) 807-8996
Email: fotogirl@bellsouth.net
Meets: First Thursday of the month at 10:30 a.m.
MS Florida Caregiver Support Group
Central Florida Regional Hospital
1401 West Seminole Blvd
Contact: Ray (386) 668-6266
Meets: Second Thursday of the month at 7:00 p.m.
MS Support Group
Highlands Regional Medical Center
3600 S. Highlands Ave
Contact: Janet (863)465-3138
Email: chief@htn.net
Meets: Second Tuesday of the month at 7:00 p.m.
The Villages MS Support Group
La Hacienda Regional Recreation Center
1200 Avenida Central
Contact: Judy or Joe (352) 750-6689 / (352)-751-1663
Email: jheath@thevillages.net
Meets: Third Tuesday of the month at 10:00 a.m.
African and Caribbean Americans with MS
Bloomingdale Regional Library
1906 Bloomingdale Avenue
Contact: Milcah (813-654-0215)
Email: acawithms@att.net
Meets: First Thursday of the month-11:30-12:30 PM No meeting June,July,August
MS Support Group of Volusia County
Ormond Beach YMCA
51 N Center Street
Contact: Laurel or Pat (386)677-4596
/ (386)760-0463
Meets: First Sunday of the month at 1:00 p.m.
Palm West Multiple Sclerosis Support Group
Keiser Career College
6812 Forest Hill Blvd- Suite D-1
Contact: Gerri (561) 561-0072
Email: palmwestmsgroup@yahoo.com
Meets: First Thursday of the month at 6:45 p.m. Dinner get
together every third Thursday of the month - restaurant. Meets: Last Saturday of the month from 1:00 - 2:30 p.m. No
meetings in July, August, or September. Call for more information.
Winter Park MS Support Group
Winter Park Hospital Librabry
200 N. Lakemont Ave
Contact: Michael 407-963-4636
Email: mwilliamson@whystressms.com
First Sunday of the month at 2 oclock.
Visit our website.
www.whystressms.com
Aces for MS Support Group
Florida Hospital-Zephyrhills Wellness Center
7050 Gall Blvd
Contact: Cecile or Vicki
(813)782-9306 / (813)788-9931
Email: Llarryandcecile@aol.com
Meets: First Thursday of the month from 3:00 - 4:00 p.m.
Eastman Warriors MS Support Group
Dodge County Hospital/Education Bldg
901 Griffin Ave
Contact: Dawn (478) 374-9695
Email: Day7light@aol.com
Meets: Third Tuesday of the month at 6:00 p.m.
Griffin MS Support Group
First Presbyterian Church
1349 Macon Rd of Griffin
Contact: Leesa (404) 326-9462
Meets: Second Tuesday
of the month at 7:30 p.m.
Hawkinsville Hawks
Taylor Regional Hospital
790 341 Blvd
Contact: Dawn (478) 374-9695
Email: day7light@aol.com
Contact Dawn for dates and times.
Gwinnett Christian Terrace
414 Berkmar Way
Contact: Dick or Sandra ( 770) 963-0216 (770) 860-1011
Email: dsdeacon@mindspring.com
Meets: Fourth Saturday of the month at 10:00 a.m. (chat and chew). Official meeting
time 10:30 a.m. - 12:00 p.m. Meetings begin and end on time.
Hope Floats-Macon MS Support Group
Pinegate Retirement Center
Charter Blvd
Contact: Marty or Michelle (478)742-9011 / (478) 335-4675
Email: martyB3@cox.net
Meets: Last Monday of the Month at 6:30 p.m.
Thomasville MS Support Group
Thomas County Public Library
201 S. Madison Street
Contact: Michael (229) 346-9746
Email: mwhiteis@rose.net
Meets: Third Tuesday of the month from 6:00 - 7:30 p.m.
Valdosta MS Support Group
Smith North View Hospital
on North Valdosta Rd
Contact: Dan Bennett 1-(888)514-9088
Email: danbenn41onebox.com
Meets: Second Tuesday of the month from 7:00 - 8:30 p.m.
HHC Multiple Sclerosis Support Group
Houston Health Pavillion
233 N. Houston Rd.
Contact: Michelle (478)787-4200
Meets: Second Tuesday of the month at 7:00 p.m.
I Can MS Support Group
Loretto Hospital (in the auditorium)
645 South Central Ave
Contact: Gloria or Kwesi (773)626-4007
Email: gloria.mcadoo&yahoo.com
Meets: Second Tuesday of the month at 6:00 p.m.
Riverside Support Group
Starbucks
8499 W. Ogden Rd
Lyons
Contact: Nancy (708) 442-8990
Email: nesenter@yahoo.com
Meets: Second Thursday of the month from 1:00 - 3:00 p.m.
Auburn/DeKalb County MS Support Group
DeKalb Medical Arts Bldg. Room 303 DeKalb Memorial Hospital
1316 East 7th Street
Auburn
Indiana
Contact: Neal or Richard (219)637-3820 / (260)493-7873
Email: 1284neal_ms1@verizon.net
Meets: Third Monday of the month at 7:00 p.m.
MS Miracle Strength Group
Westminster Village
2200 Greentree North
Clarksville
Contact: Joy or Howard (812)
725-9657
Email: Cvillemsgroup@aol.com
Meets: Last Monday of the
month at 7:00 p.m.
Fort Wayne MS Support Group
Fort Wayne Rehabilitation Hospital
7970 West Jefferson Blvd
Fort Wayne
Contact: Kent or Barb (260)
434-0322 / (260) 622-4387
Email: sk13howard@verizone.net
First Monday of the month at 7:00 p.m.
MS Busters Support Group
Edgewater Public Library
25 Stepneys Lane
Contact: Bob or Ed (410) 533-7129
/ (301) 412-0409
Email: sweeneyr02@comcast.net
Meets: First Monday of the month from 7:00 - 9:00 p.m.
MScapaders
Roy Rogers
1990 Riverside Way
Contact: Deann Walter (301) 293 6080
Email: deann.walter@comcast.net
Meets: First Monday of the month from 6:30 - 8:30 p.m.
Against All Odds
Atrium Village
4730 Atrium Court
Contact: Cheryl Cohen 410-581-0332
Email: allboutms@aol.com
First wednesday of the month at 10:00 am. Second wednesday of the month at 7:00 pm.
We offer both morning and evening meetings.
MS Support Group of Montgomery
MS Center
14330 Travilah Road
Contact: Karen (301)838-9555
Email: kmodell@montgomeryms.org
Meets: Third Wednesday of the month at 10:00 a.m.
Take "N" Strides MS Support Group
Carroll Non-Profit Center
255 Clifton Blvd
Contact: Dawn or Wendell (410) 756-1033 / (410) 984-3731
Email: dwhite1367@yahoo.com
Meets: Fourth Tuesday of the month at 7:00 p.m.
Carroll County Self-Help MS Group
Women’s Place Carroll Hospital
291 Stoner Avenue
Contact: Donna or Cassie (410) 875-4173/ (410) 756-1943
Second Monday of each month at 10:00 AM.
Grover's Gang MS Support Group
Linda Manor
349 Haydenville Rd
Contact: Marion (413) 238-5910
Email: sibhusky3@aol.com
Meets: Second Monday of the month at 6:00 p.m.
St Clair River Support Group
Clay Township Offices Building Room
4710 Pte. Tremble Road
Contact: Diann (586) 725-2858
Email: d4_43@hotmail.com
Meets: Third Wednesday of the month at 6:30 p.m.
The MS Support Group of Bad Axe
Huron Medical Center (classroom)
1100 S. Van Dyke Rd
Contact: Marilyn (989) 428-3499
Email: nanabear745@yahoo.com
Meets: Second Monday of the month at 11:00 a.m.
Corinth Crossroads Mulitple Sclerosis Support Group
MSU Cares/Extension Service
2200 Levee Road (behind the Crossroads Arena/ off of hwy 45)
Contact: Joy or Shanna (662) 462-7325 / (662) 462-7800
Email: joycforsyth@frontiernet.net
Meets: Last Wednesday of the month at 1:15 p.m.
Bitter Root Valley MS Support Group
Willow Court Apartments
150 Skeels Ave
Contact: Nancy or LaRoy (406) 363-1149 / (406)363-1315
Email: nh1149@peoplepc.com or laroyw@montana.com
Meets: First Tuesday of the month at 9:00 a.m.
Dawes County MS Support Group
Chadron Senior Citizens Center
West 3rd
Contact: Cecelia (308) 207-5384
Email: dlkerner@charter.net
Meets: Third Thursday of the month at 7:00 p.m.
West Las Vegas MS Foundation Support Group
West Charleston Library
6301West Charleston Blvd
Contact: Nina (702)270-0707
Meets: First Tuesday of the Month-7:00-8:30 PM
Bronx MS Self Help Group
Calvary Hospital
1740 Eastchester Rd
Contact: Susan (718) 792-3492
Email: msmeet@mac.com
Meets: Second Tuesday of the month at 6:30 p.m.(except July and August)
Olean Area MS Better Days Support Group
American Red Cross
528 N. Barry Street
Contact: Jessica or Janet (716) 373-5876/(716)373-9405
Email: jc_crazycat@yahoo.com
Meets: 2nd Saturday of the month-2:00-4:00 PM
MS One Step at a Time Support Group
Brookhaven Hospital Pavilion
103 West Main St
Contact: Jamie (516) 446-4410
Meets: Second Monday of the month from 7:00 - 8:30 p.m.
Wantagh MS Support Group
St. Frances de Chantal Church
1309 Wantagh Ave
Contact: Anastasia or Christine (516) 808-6784 / (516) 579-9502
Email: soula@optionline.net
Meets: Third Tuesday of the month from 10:30 a.m. - 12:00 p.m.
Triad Caring & Sharing Support Group
135 Westchester Drive
Westchester Baptist Church
Contact: Michelle or Susan (336)-851-6207 / (336)-886-5021
Email: sodell@northstate.net
Meets first Saturday of each month from 10:00am - 12pm.
Go Forward With Faith MS Support Group
Alleghany Wellness Center
508 Collins Rd
Contact: Mary or Sonia (336) 372-4218 / (336) 372-7308
Meets: Second Tuesday of the month from 12:30 - 2:30 p.m.
River City MS Support Group
Riverview Hospital (Conference Room A )
410 Dewey Street
Contact: Mike Arndt (715)325-3358
Email: mbarndt@wctc.net
Meets: Third Wednesday of the month from 10:00 a.m. - 12:00 p.m.
Fond Du Lac Area Support Group
St. Agnes Hospital
430 E. Division
Contact: Cathy or Nancy (920)922-9967 / (920)926-4213
Email: cathyriechers@msn.com
Meets: Third Wednesday of the month from 1:30 - 3:00 p.m.
Brown County Multiple Sclerosis Day Support Group
Regency Suites
333 Main St Downtown Green Bay
Contact: Diane (920)337-9805
Email: MSSBC@global.net
Meets: Second Wednesday of the month at 12:30 p.m. December meeting will be held
from 4:00 - 7:00 p.m.
Southside Hampton Roads Multiple Sclerosis Support Group Virginia Beach Central Public Library
4100 Virginia Beach Blvd
Contact: Peter or HRNMSS Office (757)671-1971 / (757) 490 9627
Email: peter-47@cox.net
Meets: Fourth Wednesday of the month from 3:00 - 4:30 p.m.
Alleghany Highlands MS Support Group
Clifton Forge Library
535 Church St
Contact: Jeannette (540)862 7590
Email: rozee@ntelos.net
Meets: Third Tuesday of the month at 6:30 p.m.
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hii, Me interested in seeking hsct[stem cell transplant] from India.me with rrms 5years post disease activity.Any one who has ms in India would be pyscological help for me.Please responds. Regards shaik
Chronic cerebrospinal venous insufficiency [CCSVI], or the pathological restriction of venous vessel discharge from the CNS has been proposed by Zamboni, et al, as having a correlative relationship to Multiple Sclerosis. From a clinical perspective, it has been demonstrated that the narrowed jugular veins in an MS patient, once widened, do affect the presenting symptoms of MS and the overall health of the patient. It has also been noted that these same veins once treated, restenose after a time in the majority of cases. Why the veins restenose is speculative. One insight, developed through practical observation, suggests that there are gaps in the therapy protocol as it is currently practiced. In general, CCSVI therapy has focused on directly treating the venous system and the stenosed veins. Several other factors that would naturally affect vein recovery have received much less consideration. As to treatment for CCSVI, it should be noted that no meaningful aftercare protocol based on evidence has been considered by the main proponents of the ???liberation??? therapy (neck venoplasty). In fact, in all of the clinics or hospitals examined for this study, patients weren???t required to stay in the clinical setting any longer than a few hours post-procedure in most cases. Even though it has been observed to be therapeutically useful by some of the main early practitioners of the ???liberation??? therapy, follow-up, supportive care for recovering patients post-operatively has not seriously been considered to be part of the treatment protocol. To date, follow-up care has primarily centered on when vein re-imaging should be done post-venoplasty. The fact is, by that time, most patients have restenosed (or partially restenosed) and the follow-up Doppler testing is simply detecting restenosis and retrograde flow in veins that are very much deteriorated due to scarring left by the initial procedure. This article discusses a variable approach as to a combination of safe and effective interventional therapies that have been observed to result in enduring venous drainage of the CNS to offset the destructive effects of inflammation and neurodegeneration, and to regenerate disease damaged tissue.
I've was diagnosed with primary progressive ms last week. I've. Had no remissions at all I just get worse. I walk with crutches and suffer extreme exhaustion. I'm currently on a 5 day course of methylphenidate 500mg. I'm fed up of people saying think positively . I can think of nothing to be positive about. My old life has gone and I can't accept this new life. Infant it's not a life it's and existence . I feel a burden to my fianc?? and extremely guilty to my children. I have a 5 moth grandson who I can no longer pick up. I'm so so sad. No one understands. My whole family is distraught and I blame myself. I think they'll all be better off without me. Does anybody understand or am I being selfish?
I am so sorry you feel that way. I too have MS and have been devastated emotionally by the burden but things will change as they always do, so you need to ride the roller coaster for as long as life lets you. No one is ever better off without someone they love!