Only 100 children around the world have Progeria who often do not live beyond their early teens, Rochelle Pondare is one of the oldest progeria patients.
![Meet the Brave 18-Year-Old Girl Who`s Suffering from Extremely Rare Disease `Progeria` Meet the Brave 18-Year-Old Girl Who`s Suffering from Extremely Rare Disease `Progeria`](https://images.medindia.net/health-images/1200_1000/Progeria.jpg)
Rochelle will be featured in a new series of Body Bizarre, which will follow her as she is accepted on an international research trial, and invited by the charity Project Michelangelo Foundation to undergo tests at Boston Children's Hospital in the USA. She will be screened for the new drug, called Lonafarnib, which has been shown to reduce organ and vein damage, delaying the ageing effects of progeria.
Dr Mark Kieran at the hospital said that it looked like the drug prolonged the survival by reducing some of the heart and blood vessel damage that the disease does. It cannot be seen as a cure-all for this disease, but could help Rochelle live into her 20s, he added. Progeria is caused by a genetic mutation which causes the cells of a patient's body to malfunction, effecting the tissues and organs, and causing children to age dramatically.
Source-ANI