National Rare Diseases Policy 2017

Rare diseases, as the name implies, affect few people in any given population. These diseases have a low prevalence and almost 80% are genetic in origin. Rare diseases also include auto-immune disorders, rare infectious diseases and rare cancers. There are approximately 7000 documented rare diseases.

Government of India (GoI) Approved National Rare Disease Policy - Flawed
- Rare diseases are almost 80% genetic in origin
- National rare disease policy finalized by the GoI needs to address all existing rare diseases in India

National Rare Diseases Policy 2017 - An Incomprehensive, Flawed Approach

The recently submitted national rare disease policy 2017 has serious flaws and gaps which need to be addressed before finalizing the policy document. Read More

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Basics of Rare Diseases

Rare or orphan diseases are least understood of all chronic diseases. They are more common than projected and kill more people than cancer and HIV together.

Test Your Knowledge on Rare Diseases

Rare or orphan diseases are the least understood of all the categories of chronic diseases. gene disorders. Almost 50% of those affected are children and 30% of these children will not live beyond the age of 5. It takes nearly 7 years to diagnose a ...

World Rare Disease Day 2017

The 10th annual Global Rare Disease Day is being celebrated each year on the last day of February. This year it is found to focus on the key theme being "Research."

First Steps for a Rare Disease Policy in India

Globally, there are 7000 rare diseases and counting. In India, there are nearly 7 crore people affected by a rare disease.

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