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Ectodermal Dysplasia - Frequently Asked Questions

Q: Which doctor should I consult for ectodermal dysplasias?

A: Individuals suffering from an ectodermal dysplasia may require consultation from pediatricians, dermatologists, dentists, plastic surgeons, and many other healthcare personnel.

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Q: Does ectodermal dysplasia increase fatigue?

A: Lack of temperature control may cause overheating in the individual’s body. If the individual with ED is not cooled down, he/she may become tired and lethargic.

Q: How do I know which syndrome is in the family?

A: A geneticist will be able to diagnose the type of ectodermal dysplasia that runs in your family.

Q: Do people affected by ectodermal dysplasia (ED) have a normal life span?

A: The life span of a person diagnosed with an ectodermal dysplasia is usually normal, but there may be an increased mortality in early childhood.


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