Treatment of Von Recklinghausen’s Disease / Neurofibromatosis Type 1
Most patients with Von Recklinghausen's disease do not require treatment. Some conditions are painful and disfiguring and surgical excision is done in them. Similarly tumors within the spinal cord and brain are corrected surgically. Consultation with the following specialties may be required:
- Orthopedic physicians: To correct bony deformities like bowing of tibia (shin bone), scoliosis and other bone deformities.
- Neuro-surgeons: To surgically treat neurofibromas in brain or spinal cord.
- Ophthalmologists: For treating intra-ocular gliomas and other types of tumors affecting the eyes.
- Plastic surgeons: To deal with facial deformities.
- Psychological or psychiatric assessment: For monitoring language disorders and learning difficulties.
Good morning sir.my name is kavitharaj and iam 28 years old.Ten years back that is when i was17 years old i have undergone an operation for tumor near the right side of my chest.The tumor was diagonised as schwannoma.After one year i started developing small boils on my chest and back.although there is no pain or burning sensation it is a cause of concern for me regarding appearance wise.Sir kindly help me out if there is any kind of cure for this boils to go.Iam also worried whether in any case this will effect my children after marriage.Sir iam also attaching all my reports regarding my operation and diagnosis.Please give me guide sir how to remove boils on my chest and back. Recently i have listen about gentic testing its use for cure boils
Hi Kavitharaj, I would suggest you to visit a renowned doctor in your city and get treated immediately. These small boils may gradually grow bigger and become more painful.
sir i had see abt genetic test its is better for my boils
I have NF 1 from birth and was discovered in 2009 when I had a biopsy done on a lump on my left hand. I have since gotten ill and had to stop working as a med. assistant when I lost my sight at work. I am in a state of constant pain...what can I do to ease the pain?
i have this problem ad when its small its pain when i touch ad after its grown big no pain ad i hv sum in mi body can u plz advice me