What are the problems faced by clients, families and service providers in giving community-based primary health care to older adults?
Health care needs are substantially greater among senior citizens or those aged 65 years and older. The rapidly increasing diversity and number of older adults is also bound to produce unprecedented demands on aging services including the health care system. Since these older adults usually experience high rates of chronic illness (diabetes mellitus,cardiac conditions, dementia, arthritis etc.) and multi-morbidities, it becomes imperative to use variety of health services as well as care providers. The ultimate goal should be to promote healthy, productive and high quality living as well as to improve life expectancy.
Community-based primary health care (CBPHC) provides a range of primary prevention and primary care services such as health promotion and disease prevention, diagnosis,treatment and management of chronic and episodic illnesses, rehabilitation support and end-of-life care among others. The primary goal of CBPHC is continuity of patient care, ease of movement across the system as well as improved system integration.
However,it has been seen that in Canada, the health care system is characterized by fragmentation of services, with deficits in transitional care and coordination with minimal effort to support patients to manage their conditions. Since the existing models of community-based primary health care were very limited in serving the older adults, a study was undertaken to see what kinds of barriers and facilitators were encountered by older adults when trying to access community-based primary care as well as to get inputs from clients, informal caregivers and health care providers. The study also hoped to find solutions to overcome these barriers and strengthen the facilitators.
A total of seven focus group interviews were held with clients, informal caregivers, and health care providers in urban and rural communities in South Western Ontario. Twenty eight clients and informal caregivers as well as 20 health care providers participated in the study. The format of the focus group interview was as outlined by Krueger and Casey along with two semi-structured interview guides; one for use with health care providers and second one for clients and family caregivers.
Analysis of data was done using a combination of directed and emergent coding. Directed coding was used to classify the data into three domains: barriers, facilitators, and recommended system improvements. This was followed by the use of emergent coding to reveal or uncover the themes within each domain including highly specific as well as abstract themes. Several themes and subthemes were generated for each of the three domains.
Barriers to CBPHC were found to be: lack of communication between patients and providers, complexity of the system which was difficult to navigate through, limited information flow to doctors and clients, improper and inconsistent follow-up care, inconsistent service delivery, funding and policy issues.
System improvements to address barriers were: expanding and integrating care teams, resources to help patients to navigate the health system, standardization of clinical practices, health assessment and information systems.
One of the primary limitations of the study was that since the focus group interviews were held in community settings, the results mainly reflected the perspective of healthier older adults since patients who were very ill possibly could not attend the interview.
The study hopes to bring about a change in the system to minimize the frustrating obstacles faced by older adults when trying to access CBPHC. However, they suggest that additional work is warranted to implement the recommended improvements and to discern their impact on patient and system outcomes.