When children with congenital heart disease receive timely treatment, 85% can survive into adulthood to live healthy productive lives.
Highlights
- Congenital heart disease is the most common of all birth defects, occurring in about nine per 1000 livebirths globally. //
- When there is a problem in the structure of the heart that is present at birth, it is referred to as congenital heart defect.
- Developing local expertise for treating children with heart disease has ripple effects in reducing the risk of death due to heart disease. Over one million children are born with congenital heart disease (CHD) each year. When children with CHD receive timely treatment, 85% can survive into adulthood to live healthy, productive lives. The cause of most cases of congenital heart disease is unknown and the rate of disease is fairly stable across countries and populations, making the burden heaviest on low-income countries with high fertility rates.
- Bistra Zheleva, The invisible child: childhood heart disease in global health, The Lancet (2016) http://dx.doi.org/10.1016/S0140-6736(16)32185-7.
Sadly, 90% of the children with CHD live in poor regions with little or no access to care. Congenital heart disease and other serious birth defects are among the top five causes of death of children worldwide.
Children's HeartLink calls for the needs of children with heart disease to be included in efforts to strengthen health systems around the word. Specifically, priorities must be made to build a pediatric cardiac workforce, collect data on CHD in national health surveys and cause of child death statistics, and finance health coverage in a way that protects families from impoverishment when they seek care.
Brian Atwood, former Administrator of USAID, urges leaders in global health and development: "Increasing access to pediatric cardiac care is a lofty but not insurmountable goal. It is an achievable goal, grounded in health system sustainability and equity. It will save children's lives."
Furthermore, individuals with congenital heart defects need lifelong care and follow-up from primary care specialists, special attention to dental care, and, in many cases, more surgical interventions from trained health professionals.
Since the turn of the millennium, child deaths have been cut in half thanks to improved public health and poverty reduction efforts. It is predicted that the number will halve again by 2030. This target will not be met without addressing congenital heart disease. As the overall rate of child deaths decreases, the burden of children born with heart disease will become more apparent.
Reliable data on the burden of congenital heart disease would better allow countries and the global health community to allocate resources to the child health needs in their communities. As countries develop economically, the burden of poverty-related diseases, especially infectious diseases and nutritional deficiencies, in children younger than 5 years diminishes.
Developing local expertise for treating children with heart disease has ripple effects to other health services. Paediatric cardiac surgery interfaces with many other specialties in a hospital. Investments in paediatric cardiac surgery can, therefore, lead to parallel improvements elsewhere in a hospital.
Reference
Source-Medindia