Health care providers need to provide stroke patients with physical rehabilitation. Apart from it, they should also consider the emotional needs of their patients and caregivers.
Proper care need to be given for stroke patients. Health care providers should also focus on the social and emotional issues that patients are facing, along with physical rehabilitation.// The new study was published in CMAJ (Canadian Medical Association Journal).
‘Principles of palliative care need to be applied for stroke patients, i.e., to support them to live well with deteriorating health and make them comfortable until their death.’
"Rather than focusing only on physical rehabilitation, a realistic approach to managing care should consider the emotional needs of patients and their caregivers," says Dr. Scott Murray, Primary Palliative Care Research Group, University of Edinburgh, Edinburgh, United Kingdom. "Balancing the need for hope of recovery with the potential of severe disability or death is important in this approach."Stroke is the second leading cause of death, accounting for 11% of deaths worldwide. Survival is especially poor for people who have had a severe total anterior circulation stroke with loss of motor control, language and other conditions.
The study of 219 patients in central Scotland with severe stroke (total anterior circulation stroke) looked at the experiences, concerns and priorities of patients, families and health care professionals in the 12 months after stroke.
In the first 6 months, 57% (125 people) died, with 1-year fatality of 60% (132 deaths.) About two-thirds (67%) of deaths occurred within the first month after stroke.
Researchers found that patients and their families reported grief over the loss of their previous life, anxiety among caregivers over whether they were "doing the right thing," uncertainty about the future and confusion about prognosis.
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"Many patients and informal caregivers would have welcomed more support in making decisions and in planning for the future from day one," writes Dr. Murray with coauthors. "The focus was on active rehabilitation, recovery, motivation and hope, with much less discussion and preparation for limited recovery."
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In a related commentary, Dr. Jessica Simon, Department of Oncology, University of Calgary, writes "the challenging questions for physicians and other health care providers should not be, 'What shall we call it?' or 'Who should receive palliative care?'; the questions for each patient who is facing the challenges associated with life-threatening illness should be, 'Am I providing the palliative care support my patient needs?' and 'Is there access to sufficient specialist palliative care resources in my community if needed?'."
"Outcomes, experiences and palliative care in major stroke: a multicentre, mixed-method, longitudinal study" was published in the journal recently.
Source-Eurekalert