Postcode Lottery Inequities in ADHD Treatment for Young Adults

A national survey revealed significant differences in Attention-deficit/hyperactivity disorder (ADHD) treatment, underscoring the challenges many young adults face after turning 18. Researchers caution that the existing system is inadequate for many young adults transitioning from children's to adult services, leaving them without access to necessary treatment due to poor coordination between services (1^✔ ✔Trusted Source
Support for primary care prescribing for adult ADHD in England: national survey

Go to source). More than 750 people from across the country – including commissioners, healthcare professionals working in primary care, and people with lived experience of ADHD – completed the MAP National Survey, which highlights challenges that GPs face when prescribing ADHD medication.

ADHD: New Insights

ADHD affects up to seven percent of children and up to five percent of adults, with symptoms including patterns of hyperactivity, impulsivity and/or inattention which interfere with functioning in daily life. Failure to treat ADHD and gaps in treatment, especially as young people become adults, can have severe impacts for patients and families, increasing the risk of mental health crises and difficulties with work, education, and relationships. This failure also places additional pressure on those working in health services.

The survey found variations in “shared care” agreements between GPs, mental health specialists and patients – which need to be in place for GPs to be able to prescribe ADHD medications. This was a particular problem when young people move to adult mental health services, suggesting the current system lets down adolescents at a critical time in their lives. Current NICE guidelines recommend GPs prescribe medication for adult ADHD patients under a shared care agreement with adult mental health services.

However, the survey found that such agreements are not always easy to set up, with evidence suggesting that GPs may not feel sufficiently supported to prescribe in this way. Indeed, if appropriate support is not in place, some GPs may not prescribe ADHD medication due to concerns around insurance and liability. This can be a particular problem for patients with a private diagnosis of ADHD, and leaves GPs unable to provide effective care, and many patients without access to the medication they need.

Furthermore, more than 40 percent of survey respondents reported waiting times of two years or more for an appointment with adult mental health services. This leaves GPs with the responsibility for providing care, but without the support they need to offer the best care for their patients at a crucial time in their lives. This can include removing access to medication, despite the treatment having been successful during childhood. Issues with access to treatment for ADHD are also worst for some underserved groups, such as young women, and young people leaving care, which is increasing health inequalities.

The survey results come just as NHS England has announced the establishment of a taskforce and a major review of ADHD services. As stated by NHS England: “People with ADHD deserve a caring and effective service from the NHS and wider society. We know there is more to do, but we do not underestimate the complexity and challenges in realising this ambition.”

Advertisement

Dr Anna Price, Senior Research Fellow at the University of Exeter, said: “Our findings highlight the need for a coordinated approach to address problems that lead to a postcode lottery for patients trying to access treatment for ADHD. GPs and other primary care professionals really need better support so that they can provide shared care prescribing of ADHD medication in line with UK guidelines."

“We know that failing to treat ADHD can have a huge impact. Turning 18 is often a crucial and sensitive time in life, and our research shows that lack of treatment at this time can be particularly damaging for young people who are learning to self-manage their health needs, at the same time as perhaps sitting important exams, leaving home for the first time, and embarking on careers or university study."

Advertisement

“We welcome the establishment of the NHS England taskforce and is a much-needed step towards better outcomes for people with ADHD.”

Reference:

1. Support for primary care prescribing for adult ADHD in England: national survey - (https://bjgp.org/content/early/2024/09/02/BJGP.2023.0595)

Source-Eurekalert