The “Initiative on Hemophilia Care VI Conference” is an event that helps in sharing information on hemophilia with the entire country.
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‘World hemophilia day 2022 conference is held to find the best solution and discuss the policy level changes required for hemophilia.’
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Hon'ble Sh. Mohammed Faizal P.P, MP, Lakshadweep, NCP, and Hon’ble Sh. Harsh Mangla, IAS, Director, NHM, MoH&FW also marked their presence at the conference speaking about the new policies and steps taken by the Government to make the best services available and create awareness about rare diseases in India.
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World Hemophilia Day is one of our main initiatives which is observed globally in 140 countries. The more we engage on this day, the greater will be the opportunity for the Hemophilia Community to advance its cause.
The Health Ministry is providing complete support to HFI in pursuit of comprehensive Hemophilia care. It has come a long way but has a long way ahead. There are certain hurdles like our identification is low. Huge lack of procurement. Uneven distribution. Procurement possesses, which can be addressed by having a good hemophilia policy at the state and central level.
Remarkably, the integration of the Hemophilia Federation (India) with the Health Ministry in the last four programs was highly successful as Hemophilia could receive recognition.
The federation has been raising the voice of the Hemophilia Community for 39 years since its inception in 1983. Through this initiative, it aims to engage with the Health Ministry and other stakeholders concerning creating awareness, finding executable solutions and promoting comprehensive care for Hemophilia patients at local, regional, and national levels.
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In addition, prominent doctors, hematologists, physiotherapists, and hemophilia caregivers from various medical colleges & hospitals in the country are also participating.
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Source-Medindia